My "better half". An amazing husband, father and my best friend. He loves his kids, God, fast cars and dirt bikes. He is the most wonderful person I know!
My first born. The best big brother ever and the comedian of the family. With a heart of gold, he loves to ski, play sports and video games. He may be the oldest, but he will always be my baby!
Our six year old with a passion for singing and dancing. A little princess for sure. She knows what she wants and is determined to get it. She loves her babies, brothers and her daddy. She is a master at Guitar Hero and she already knows how to use a screwdriver. We are so proud of her, she is our little angel!
Our very smart five year old who loves his mommy. He loves to snuggle and play on the computer.You will find him sucking his thumb and carrying his blue blankie everywhere he goes. An I-phone expert and a professional "plasma" car driver, he is a lover of food and all things electronic. What a sweet little blessing he is to our family!
I am blessed with a wonderful husband of five years and three amazing children. I am a RN but have decided to stay home and raise my children. I love shopping, the color pink, reading a good book, anything with polka dots, the Lord, diet cokes, reality tv, the beach, decorating my house, taking pictures and always looking at life with the glass half full. I love my life and my family, God has definitely been good to me!!!
This month has been okay. No dramatic improvements with Ayla. She is still limping quite a bit and the physical therapy is not going well. She cries just about the whole 30 minutes we are there. She will not let me put her down and she will not let the therapist touch her. She is very weary of new people and I do not blame her, she has been through a lot at her young age and I suspect that she is afraid. Her swelling is still there, there may be a little decrease but not much at all. We also had her eyes checked this month. With the type of arthritis that she has, she is at an increased risk for uveitis which is an infection/inflammation of the eye. The only way to check for this is by doing a slit eye exam. I have also been noticing that her eyes have been crossing at times so the Dr. also dilated her eyes and checked for that as well. Of course Ayla threw a fit and we had to hold her down. John was beside himself and had to leave, he does not handle things like this well. Everything was okay, praise God and he said he would see us again in three months for another exam. He also asked me to talk to her and explain to her about the test so that she may be more willing to cooperate the next time. I almost laughed out loud. It has obviously been a long time since he has had a toddler. There is no reasoning with a 20 month old, especially not with Ayla. I am just hoping and praying that she will start to show some type of improvement. I love her so much and it just kills me to see her struggle to walk on a daily basis. I know she looks normal to everyone else, but I see the daily struggles that she endures and sometimes it is just unbearable. Oh yeah, I forgot that we also got fitted for her knee brace a couple of weeks ago, Im sure you can guess how that went. TERRIBLE. She didn't cry, she screamed the ENTIRE time they were making the brace. I know I will never get her to wear this, she is scared to death of it as of right now.. we will see!
Hi, this blog was initially started to document my daughter's trials and triumphs as she lives and copes with an auto immune disease, Juvenile Rheumatoid Arthritis. Although I often update on Ayla's condition, this blog has become our "family blog" as well. Ayla was diagnosed at the age of 18 months old, she is now six and we are still fighting this battle. She is on naproxen and weekly injections of Methotrexate (a chemotherapy drug) and Enbrel. If you are new to this blog, please start at the beginning to read about Ayla's initial diagnosis. I am very hopeful that we are going to defeat this and that she will lead a healthy, active life. I tell her all the time that she is my little warrior. She is so brave and I love her so much. I appreciate any and all of your prayers.
Isaiah 41:10 Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand."