It was a lot to take in and needless to say, we were very upset. Ayla, however did make us laugh at the end of the appointment. When we go see the Dr, the nurse will give Ayla a few stickers so she will not cry. On this particular day they had some new stickers (sesame street, dora) and she got quite a few of them. While we were talking to the doctor, Ayla was putting stickers on my shirt. No one was really paying attention to what she was doing because we were so heavily engrossed in conversation. When the doctor got ready to leave and I got up, I looked down and I had about 100 stickers on my shirt all in neat little lines. It was so funny, the doctor said "I see she likes to decorate". Oh well, it was a much needed laugh after such a serious conversation.
The ride home was depressing, we didn't say much. We were both to upset. If I could have this illness instead of Ayla, I would take it in a heartbeat. I just want to see her happy and healthy. To the average person who does not know Ayla, she looks healthy on the outside, but I see the everyday struggles that she has, and it is just not fair. No child should have to suffer with aching joints every morning or have trouble walking, running, jumping. I just pray that we are doing the right thing about putting her on this medicine. I just don't know what else to do right now. Please continue to pray for her.