We told the doctor's about our concerns regarding the medicine and she talked it over with us until we felt comfortable. Well as comfortable as we can be I guess. We don't want to put her on the medicine but we feel that we do not have a choice at this point. I do not want her to get worse and I do not want her joints damaged later in life because we did not treat it now. The longer you leave a joint inflamed, the more damage you will eventually have. With her sed rate so high, there is definitely some inflammation going on. She said the most common side effects are nausea (for about one day) mouth sores, mild hair loss, headaches and rash. If a rash would occur, then she would probably not be able to take it. The Dr. wants new lab work done, x-rays of all of her affected joints, an appointment with her pediatrician so she can get the flu shot (because mtx lowers your immune system) and all of her immunizations up to date and finally an eye appointment to make sure her eyes are still clear. Wow, it is going to be a busy couple of weeks. Ayla will definitely not be happy about all of these appointments. We have to wait two weeks after her immunizations to start the medicine.
While we were there, a Physical therapist came in and explained to me different exercises that I can do with her at home. She also made a piece of foam to put in Ayla's left shoe called a shoe lift (the unaffected side) because they discovered that her right leg is 1cm longer than the left. This is not unusual because the leg with the increased blood flow from inflammation will sometimes grow longer. This increased blood flow brings more nutrients to the bones around the knee and they will grow more rapidly, causing the leg to be longer on that side. Once the inflammation resolves, the legs will eventually even out again. So with that, we got all of our prescriptions and orders and left. Our appointment ended up being THREE hours long. I repeat THREE HOURS. Ayla eventually fell asleep for a little bit while we were talking to the DR. By this time we were starving and we headed to a restaurant for a bite to eat. One of John's friends had told him about a place that was on the river so we decided to eat there. Ayla did great at the restaurant, we just have to eat real fast so we can leave before she gets bored and wants down. We sat inside next to the window so you could see the river from where we sat. There was a little family of ducks that held Ayla's attention while we were eating. Eventually they left and she kept asking "where the ducks are" I told her that they went home. After that she kept saying "ducks go home" for the rest of the dinner. It was so cute!!
We arrived home almost 12 hours from when we left. We have another appointment in one month. Hopefully it will not be as long as this one!!